Booklets

University of Miami Hemophilia Treatment Center

Booklet Series

Dr. Joanna A. Davis, along with the HTC team, has created a series of educational booklets to guide families that are dealing with issues related to bleeding disorders. The booklets are available free of charge to members of the bleeding disorders community around the country. To order booklets for your center, call Patrice 305-243-6925.

To view a preview of the booklet, click the cover.
For a printable order form click here.

New! The Princess and the Pea and Me

Remember that old fable about the princess who was so delicate, she feels a tiny stone through many, many mattresses? Well, the little girl in this story has von Willebrand's disease, and she bruises so easily, she thinks she must be a princess herself!

Don't Let This
Happen to You!

Visual/pictorial presentations‚ especially when combined with humor, can be more effective than formal teaching sessions. The HTC has created a "comic book" illustrating some common sense responsibilities to emphasize the consequences of failing to follow through.


Understanding Hemophilia	Shoulders, Elbows, Knees and Toes	I Can Do It Myself
In this booklet, the therapies necessary for the care and treatment of hemophilia patients are explained.	Developing target joints and the necessary therapies involved in their treatment can be stressful. This story follows a boy as he learns about them.	Learning self-infusion helps the patient in this booklet gain independence and self-confidence.

Everyone Can Learn Something	My Brother Has Hemophilia	An Inhibitor? What's That?
This story underscores the need for patient and parental awareness and the need for parents to advocate for and empower their children.	This manual explores the issue of sibling rivalry as it may manifest itself in families coping with hemophilia.	An additional problem, known as an inhibitor, can make management of joint bleeds and surgical procedures more difficult.

What's Immune Tolerance	I Have Von WilleWHAT?!	QRSTUV My Mom Said I Had ITP
Immune tolerance therapy, used to treat patients who develop an inhibitor, is examined.	VWD is the most common bleeding disorder. This manual explores the tests necessary for screening.	This booklet is intended to make things a little clearer for those families having to deal with the diagnosis of ITP.
To order a booklet via email, click here.		Back to top^
	But, I Don't Have a Bleed!
	This booklet is meant to explain the process of prophylaxis, while presenting several different situations in which it is used.